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#1170750 --- 04/12/10 11:09 AM Re: Brain tumor [Re: bluezone]
past tense Offline
Diamond Member

Registered: 03/05/03
Posts: 29711
Loc: Houston, TX
I ran that 5k for brain cancer research yesterday. It's called Run for the Rose and this was its 8th year. Marnie Rose was a doctor who died from brain cancer and the race is held in her memory. There were more than 4000 runners on hand and the year's goal of $440,000 raised was met. Marnie Rose's mom spoke before the race and said that eight years ago there were zero "survivor teams" running - yesterday there were TWENTY SIX.

A speedy recovery.
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#1170800 --- 04/12/10 01:40 PM Re: Brain tumor [Re: past tense]
nease174 Offline
Senior Member

Registered: 06/04/08
Posts: 1684
Loc: NY
Originally Posted By: past tense
I ran that 5k for brain cancer research yesterday. It's called Run for the Rose and this was its 8th year. Marnie Rose was a doctor who died from brain cancer and the race is held in her memory. There were more than 4000 runners on hand and the year's goal of $440,000 raised was met. Marnie Rose's mom spoke before the race and said that eight years ago there were zero "survivor teams" running - yesterday there were TWENTY SIX.

A speedy recovery.


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#1170855 --- 04/12/10 05:11 PM Re: Brain tumor [Re: nease174]
dachshunds_rule Offline
Member

Registered: 11/20/09
Posts: 214
Loc: NY
Hi everyone
Yup I'm still here.They are not sure now what they are going to do.My Doctor called and is putting my case in front of the brain tumor board Thursday morning.He thinks its going to be to risky to do the surgery so now he wants to get others opinions on my case.My Doc said that maybe they would try to treat it with Chemo and radiation first.I will know for sure Thursday and will give ya a up date..
Thanks everyone you all are so great!!
Mike
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#1170875 --- 04/12/10 05:47 PM Re: Brain tumor [Re: dachshunds_rule]
SilverFox Offline
Senior Member

Registered: 11/19/00
Posts: 6485
Loc: Waterloo
Prayers for your sucessful treatment what ever it may be. Think positive and live each day to its fullest.
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#1170876 --- 04/12/10 05:48 PM Re: Brain tumor [Re: dachshunds_rule]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
Originally Posted By: dachshunds_rule
so now he wants to get others opinions on my case.


other opinions can be helpful
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#1170966 --- 04/12/10 10:28 PM Re: Brain tumor [Re: bluezone]
Code Red Offline
Senior Member

Registered: 06/17/06
Posts: 6687
Loc: Out of my mind....
Mike my doc wasn't worried too much. I didn't have a lot of brains to begin with. So the risk was minimal, lol. Keep up the faith my friend, things will all be behind you before you know it. Then the healing and moving forward with your life will begin. You and your "rock" have to think positive.

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#1170973 --- 04/12/10 11:24 PM Re: Brain tumor [Re: Code Red]
queenbee Offline
Senior Member

Registered: 01/22/08
Posts: 1758
Loc: soul quest
Was wondering where u had gotten too, plz keep us updated we are keeping u in our prayers here.
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#1171757 --- 04/15/10 09:37 AM Re: Brain tumor [Re: queenbee]
dachshunds_rule Offline
Member

Registered: 11/20/09
Posts: 214
Loc: NY
well the Docs kinda threw a wrench in my gears once again.Now they might bot do the surgery because it is to risky and dangerous.They are having a board meeting with the brain tumor specialist this morning and see what they all think.They might opt to try chemo and radiation first.Thats what they were going to do early on but because my big tumor is so big and when they first radiate any tumor they swell at the beginning they felt I didnt have enough room for it to swell without causing problems.I believe now maybe they are thinking that it would be less of a chance for problems by letting it swell rather than doing the surgery.They said it was going to be very risky and dangerous to try and do surgery to "de-bulk" first.So I guess I have to just leave it up to the pros.I will keep you all posted.
Thanks again to all of you for your support..it means so much to us!
Mike
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#1171765 --- 04/15/10 10:11 AM Re: Brain tumor [Re: dachshunds_rule]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
Originally Posted By: dachshunds_rule
They might opt to try chemo and radiation first.


could they try lower dosages?
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#1172146 --- 04/16/10 07:18 PM Re: Brain tumor [Re: bluezone]
dachshunds_rule Offline
Member

Registered: 11/20/09
Posts: 214
Loc: NY
they called today and the surgery is off for sure now.They are in fact going to try chemo and radiation/They are also giving me steroids to help keep the swelling of the tumor down as much as possible.I go to the new Doc that will be doing this next wednesday.I will let ya all know what my schedule looks like
Thanks
Mike
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#1172173 --- 04/16/10 10:21 PM Re: Brain tumor [Re: dachshunds_rule]
Code Red Offline
Senior Member

Registered: 06/17/06
Posts: 6687
Loc: Out of my mind....
Mike, by accident they gave me steroids just before I was air lifted to Upstate Medical in Syracuse. Those steroids saved my life. They kept the swelling down, and by doing that, they dramatically lowered my chances of any brain damage. Keep the faith up Mike, it sounds like you have a good doctor. Say hi to "Rocky" for me.

Bill,

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#1172278 --- 04/17/10 10:45 AM Re: Brain tumor [Re: dachshunds_rule]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
Originally Posted By: dachshunds_rule
they called today and the surgery is off for sure now.


the location presents the most problem with swelling. The doctors seem to be making the proper steps
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#1172373 --- 04/17/10 04:19 PM Re: Brain tumor [Re: bluezone]
queenbee Offline
Senior Member

Registered: 01/22/08
Posts: 1758
Loc: soul quest
Many, many prayers and lots of fingers crossed that this is the route u must take for the best results. I'm sure each one of these doctors have had experience with this type of tumor and they know what is best.
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#1172568 --- 04/18/10 05:15 AM Re: Brain tumor [Re: queenbee]
Hong Kong Offline
Member

Registered: 05/14/08
Posts: 394
Loc: caged
Mike,

Seeing how they are postponing surgery please explore ALL options and have your voice heard, YOU are the patient and ultimately it is YOUR decision!

In Syracuse at Upstate Hospital they have the "gamma knife". They pinpoint the tumor and blast it with high doses of radiation. The body can tolerate many more treatments because only the tumor itself is receiving the radiation unlike other treatments where they radiate a larger area and the body can only tolerate so much radiation

http://www.radiologyinfo.org/en/info.cfm?pg=gamma_knife

Http://www.upstate.edu


Also at Hemotology Oncology of Central New York they have the *Cyber-Knife* They are able to use even higher doses than the gamma knife because it is even MORE precise than the gamma knife. Some patients have had their tumor eradicated in as little as 3 painless treatments. Standard radiation is daily for 6-7 weeks and after 6-7 weeks you can't have anymore radiation even if it hasn't shrank or comes back \:\( where as with the cyber knife you can basically receive unlimited treatments

http://www.cancerbeware.com/

http://www.hoacny.com/

Not only that but at Hematology Oncology of Central New York they have an extensive billing department that searches endlessly for grants and such to help with the cost of treatment. Also as a patient you are entitled to numerous FREE services such as Massage, Rikki, Reflexology, Mentor program, counseling as well as Family counseling and special counseling and groups for children!

PLEASE explore ALL your options!!! DO NOT settle for "NO" or "There is nothing we can do"!!

Best Wishes and you are in my thoughts. If you need more info or just want to talk, don't hesitate to contact me via private message.

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#1172686 --- 04/18/10 12:55 PM Re: Brain tumor [Re: Hong Kong]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
valuable info
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#1172811 --- 04/18/10 11:48 PM Re: Brain tumor [Re: bluezone]
queenbee Offline
Senior Member

Registered: 01/22/08
Posts: 1758
Loc: soul quest
Nice job HK, very good info.
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#1172814 --- 04/19/10 01:07 AM Re: Brain tumor [Re: queenbee]
Hong Kong Offline
Member

Registered: 05/14/08
Posts: 394
Loc: caged
Thank you Queenbee and Bluezone.... I just don't like seeing patients take a *back seat* to their treatment. Become informed and have your voice HEARD!!! 2nd, 3rd, and sometimes 4th opinions from different Doctors saves lives!

The Doctors at Hematology Oncology of Central New York are some of the BEST in the United States. Not only that they have NUMEROUS professional relationships with other Oncology Dr.'s around the USA that that speak with and get opinions and treatment ideas if they are stuck with a particular problem. They do not rest until they get the answers or treatment that works!

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#1173037 --- 04/20/10 10:22 AM Re: Brain tumor [Re: Hong Kong]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
thought they used lasers or freezing methods to reduce tumors
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#1173039 --- 04/20/10 10:24 AM Re: Brain tumor [Re: Hong Kong]
bluezone Offline
Diamond Member

Registered: 12/19/04
Posts: 32557
Loc: USA
On Tuesday April 20, 2010, 11:09 am
NEW YORK (AP) -- Shares of Array BioPharma Inc. surged Tuesday after the company said it licensed a group of experimental cancer treatments to Swiss drugmaker Novartis AG in a deal that could include $467 million in payments plus royalties.

Array licensed its cancer drug candidate ARRY-162, along with similar drugs, to Novartis for $45 million upfront and potential development and regulatory milestone payments of $422 million. The drugs are designed to block an enzyme that is involved in the growth and survival of cancer cells.

Array, which is based in Boulder, Colo., will also get royalty payments of more than 10 percent on sales outside the U.S., and can get larger payments on U.S. sales if it meets funding obligations.

In morning trading Array stock jumped $1.05, or 34.8 percent, to $4.07.

The company is conducting an early-stage trial of ARRY-162 to evaluate the drug's safety and determine the most effective dose. It is being given by mouth to patients with solid tumors, and Array wants to expand the study to include patients with cancer of the biliary tract.

The other drugs involved in the collaboration are ARRY-300, which Array described as a backup to ARRY-162, and other drugs that are intended to block the same enzyme.
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#1173297 --- 04/21/10 06:50 AM Re: Brain tumor [Re: bluezone]
Hong Kong Offline
Member

Registered: 05/14/08
Posts: 394
Loc: caged
Originally Posted By: bluezone
thought they used lasers or freezing methods to reduce tumors


The gamma knife and cyber-knife are pin point lasers that use very high doses of radiation radiation to blast the tumor and ONLY the tumor. Sometimes they use more radiation in 3 treatments of the gamma or cyber knife than a person receives in 6-7 weeks of daily radiation treatments.

Freezing the tumors depends on the type and location of the tumor, and is still a relatively new procedure and the "jury is still out" on the effectiveness for some Oncologists.

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